Thursday, January 14, 2016


I've been trying to do more for Madi.  Help her reach her full potential.  God that sounds corny.  Anyway, since she's receiving the EDCD waiver (I still don't totally know what that means) we can move forward with more therapies for her.  She had a speech evaluation in December and I was reading through the notes last night.  One very sweet part said she was very engaged in the activities and was very social.  THAT's a big chance.  When she was little, not so much.  So that warmed my heart to read.  But then... out of testing scores. If 100 is the mean score of kids her age, she scored around 50. Sigh.  I know she has a significant intellectual disability but it's always hard to see in black and white. 

Pedro and I were talking about this the other night.  Madi was snuggled tight against him, watching a show.  She's only a young child, mentally but that means she still acts like a...young child.  She's still innocent and loves to be held and snuggle.  (and throw her poop on the wall, but that's another story)

I don't know how much things will change with us getting some help.  I've learned over the years to be conservative with my enthusiasm because it never turns out how you might think it will.  And I'm tired of having my hopes crushed.  Should I start writing an emo song?  Good grief.

And some princesses don't appreciate it when you sing the ABC song.